Monday, October 20, 2014

Diabetes Advocacy Agenda For The Week: #DocasksFDA, #Vote4DM, #BigBueTest #WeAreInThisTogether, #WalkwithD

Last call to let the FDA hear your voice for #DOCasksFDA meeting on November 3rd
Personally, I'm all about letting the FDA hear my voice, my diabetes concerns and dreams,  so I took the following short survey created by the amazing folks at diatribe. www.diaTribe.org/survey
If you want your voice to be heard, TAKE THE SURVEY NOW. 
And if you'd like, you can also create a video expressing your #DOCasksFDA hopes and dreams.

FTR: Google+ gave me a new youtube page & won't let me 

merge my old page with the new. SIGH.
Next up on the Advocacy agenda for this week: 
There are two  Tweet-ins scheduled on October 22 and 229th, both beginning at 8p.pm.
The Tweet-ins are all about the #Vote4DM campaign, targeting the folks on Congress (who work for us) that there are three diabetes bills that require their "YES" vote. 
To quote Bennet over at YDMV:  
  • Go here http://www.stripsafely.com/the-twitter-page/
  • Find your elected officials.
  • Click the 3 links. Coordinate, Educate and CGM for your Senators and Representative. (Bonus points for Tweeting Congressional leadership too.These Bills are so important to people with diabetes and regardless of the age of type.
  • #Weareinthistogether 
Today's the kickoff for #BigBlueTest. 
Each #BigBlueTest that you log between today and November 19th generates a $1 donation from the program sponsors (up to $35,000) and granted to nonprofit organizations  providing life-saving supplies/services to people with diabetes in need. 

By testing your blood sugar, exercising for 14 to 20 minutes and logging your results on Instagram, twitter of Facebook via the #bligbluetest hashtag, you not only help yourself, you helping others - And that's what it's all about!
#weareinthistogether!
 #walkwithD 

Friday, October 17, 2014

#DOCasksFDA: THIS = HUGE, Your Voice Is Crucial & The Clock Is Ticking~

#DOCasksFDA - THIS is a big deal people - And the clock is ticking!! 

On November 3, the FDA will host an unprecedented discussion between the diabetes community and senior agency leadership (both drugs and devices). This virtual dialogue will be webcast live from 1 - 4 pm and includes a panel of patients (T1 and T2), and reps from ADA, JDRF, and diaTribe. 

This is HUGE and I want my voice to be heard by the FDA, so I took the following short survey (like 12o seconds at the most) created by the amazing folks at diatribe. www.diaTribe.org/survey


If you want your voice to be heard, TAKE THE SURVEY NOW. 

TIME IS OF THE ESSENCE: Surveys MUST be completed by Tuesday, October 21st, so diaTribe can analyze the results (i.e.,our amazing thoughts) and get them to the FDA well before the November 3rd, meeting. 

The FDA is working on a registration sign-up for the event and that info will be posted online in the next week. 


Guys, lets utilize our collective voices and let the FDA hear them!! 

Wednesday, October 15, 2014

Almost Wordless Wednesday: Wait, WHAAAT?!

I LOVE hellogiggles.com & follow I'm both a fan and a follower of their Facebook book page.
So you can imagine my surprise when  the following picture HG posted yesterday, showed up in my Facebook feed last night. 
YEP, I damn near spit out my juice because I was LOLing so damn hard!
The above "Steel Magnolias" poster is part of a group of movie themed movie posters from CuteStreetD.
Personally, I prefer "The Big Lebowski", "The Princess Bride"; "House , and the  "This Is Spinal Tap," (OK, ESPECIALLY the Spinal Tap) prints they sell. 
But I still think it's cute - Not really sure how my pancreas feels though ;)  

Monday, October 13, 2014

Diabetesalicious Lite: Some Stuff Not Related To My Low Blood Sugar Hangover, Edition.

Currently dealing with a low blood sugar hangover that occurred this morning at 4:30 a.m and resulted in a 7 a.m. 297 blood sugar. 
I'm not going to focus too much on it because I just don't feel like it. 
I have a lot of work to do, holiday or not - and what went up, did indeed go down - even if it took all freaking morning and took up way to much of my brain's bandwidth. 
Instead, I'm focusing on some cool links of the Diabetesalicious Lite variety~ 

Are you looking for gluten free candy and carb counts? 
If so, check out THIS POST over at Children With Diabetes  - It's a list of gluten free candy/carb count - AWESOME. 
Do you know who Diabetes Canine Shero Marjorie is?? Click HERE and find out - And get your cool Marjorie shirt while you can! All sales of the shirt benefit The Diabetes Media Foundaton. 
On October 16th 4pm, EST my first friend with diabetes, Joe Soloweijcyk's being being interviewed over at tudiabetes.org about his amazing book, "A Type 1 Diabetes Guide To The Universe."  
I've read the book and it's awesome, as is Joe.  So tune in, you'll be glad you did. 
And download the book, already! 
Speaking of tudiabetes.org and things that occur in October, October 20th is the kickoff of the #bigbluetest
between October 20th and November 20th, 
The #bigbluetest is EASY. All you need to do is: 
  1. If you have diabetes you test their blood sugar (no diabetes? no testing!)
  2. You exercise for at least 14-20 minutes.
  3. You test your blood sugar again (again, only if you're a PWD)
  4. You share their experience on BigBlueTest.org or through the app for iPhone or Android.
  5. It's super easy, it's free, and it helps you and others living with diabetes! 
  6. And here's the kicker: For every result that's shared, The Diabetes Hands Foundation will grant 1$ in support of people with diabetes, globally. READ more about #thebigbluetest, HERE. 
Some Non Diabetes related links: 
Here's a list (courtesy of Mashable,) of 18 products versions that cost more, simply because they are made for women. Bullshit Factor, threat level: INFINITY.

My niece Cristin's show, "A to Z" premiered a few weeks ago on NBC and it's AWESOME. 
If you haven't watched it, you need to. It's on every Thursday on NBC, at 9:30, EST. 
I'm incredibly proud of Cristin and I think the show is really smart and funny, much like my niece! 
And I love that for the past 7 years I've been able to share Cristin's success with The Diabetes Online Community. Seriously, it makes me smile - And I love to smile, smiling's my favorite! 

Wednesday, October 8, 2014

Diabetes Memory #78,290: Food Prep FlashBacks

I grew up at the tail end of the Diabetes Dark Ages. Only a few types of insulin were available then, we tested urine instead of blood sugars and there were no such things as CGMs or insulin pumps. My parents had 3 children out of 6 with type 1 and my dad had t1. Things were hectic and crazy and it wasn't calm or easy. 
I’ve written about it before but honestly I don’t know how the hell they survived diabetes sans support - but they did - And I am so grateful.  
It’s funny that food prep can bring back childhood memories of life with  D, but it totally does and did. The following happened Sunday night. 
######
Mom & I - A  few months before I was dx'd
Sunday night I was prepping food for the week. And by prepping I mean pre-slicing Granny Smith apples, spritzing the slices with juice from a lemon so they wouldn’t brown in the fridge and would be all ready for my Monday morning green smoothie. 
I washed a bunch of baby spinach and spun it dry in my salad spinner and cut up bananas chunks to freeze for the same breakfast smoothie. 
I pre-peeled organic carrots, sliced them and threw them in a glass jar filled with ice water and placed it in the fridge, so they were good ready whenever I wanted to snack on something crunchy and low carb. 
My prep time was quick and just as I was finishing up the carrots, I had a flashback of my childhood  - to my mom standing at the sink peeling carrots and placing them in a glass jar filled with ice water in the fridge - Something she did daily and long before I was diagnosed. Followed by a memory of her washing grapes and strawberries, drying them completely,  then counting out exactly 12 grapes, wrapping them in saran-wrap for my school snack bag. 
Next she' measuring 1 cup of strawberries, slice them in half and place them in a small Tupperware container and put  it in my lunch box.
Mom tried so hard to make things as normal as possible for me/us when it came to eating. 
As a family, we only dined on small baked potatoes instead of big ones at dinner, there were always lots of raw veggies because I liked raw veggies better than cooked veggies - Still do to this day.  And always sugar free chocolate pudding for dessert. 
FTR: I don’t dig sugar free anything, except for sugar free chocolate pudding.
Yep, my mom did her absolute best and I wasn’t always grateful - I fought the grapes and refused to eat them  a lot of times because “who the hell only eats 12 grapes?” 
I preferred strawberries and apples because I felt like I was getting more bang for my diabetes buck - they weren’t free foods, but they sure felt like it sometimes.
Looking back, she let me go to sleepovers because she knew it was important to be with my friends. I’m sure there were phone calls made between the sleepover parents and mine and I have no doubt that my sugars were on the high side the next day, but I don’t remember. I just remember the sleeping over, staying up and having fun, parts. 
I took tap dancing on Saturday mornings and did gymnastics 3 days a week. 
I always carried my snack with me and mom waited with the rest of the moms in the waiting room until the end of class, when we performed for our parents. 
I always ate a big snack class before class and if I needed to eat during, I ate. 
My parents made sure my teachers knew and nobody ever made a big deal of it - except for my 5th grade teacher - but that’s for another post. 

And as I stood at the sink thinking about all those things my eyes started to get all leaky. 

I was a lucky duck to have her as my mom and I know it!
And I miss her so much.

Tuesday, October 7, 2014

Diabetes Diaversary / Diagnoses Dates - Can They Have A Cyclical Twist?

I’ll never forget being in a dressing room years and years ago and the Sales Woman rushing back to my changing cubby with the harshest of lightening and with more clothes for me to try on. 
She saw my insulin pump clipped to my hip and and of course she asked me if it was a beeper. 
When I explained that it was an insulin pump and I that wore it because I had t1 diabetes, she nodded her head knowingly and asked me when I was diagnosed. 
When I told her Halloween, but had exhibited signs earlier, I’ll never forget her response. 
Sales Woman: Diagnosed in the fall, that makes sense. September and October seem to be the golden time for so many diabetes diagnoses. 
And the following went through my head: 
  1. I had never really thought about that or noticed it 
  2. I didn’t know how to answer her and I think I said something like: I’m not really sure.  I don't know, maybe? 
And I thought about her words for a long time after she spoke them. 
And for some reason weirdo reason I had a flashback of that conversation today and I’m not sure why. 
Probably because there’s a slight chill in the air and people people have been posting an inordinate amount of pumpkin and fall type pictures on Facebook as of late and have the irrepressible urge to make soup from scratch and wear my cool boots. 

 And then of course there’s the whole 37 year Diaversary around the corner, thing. 

So here are my questions for you guys: 

Have you noticed that you/your family members with diabetes share similar Dx dates with others in the DOC and beyond?   
Do you think that some Diabetes Diagnoses can have a cyclical spin? 

And lastly. Do you remember your Dx date? 

OK, I’ll start, I was dx’d on Halloween and over the years I’ve met many people dx’d in September and October.  And most recently, during last week’s #DSMA chat when I learned that  @Diabetesevryday and I shared the same Diaversary.

FTR: So was Bennet's son!

And according to my Google skills, a 2009 Finnish study found a correlation involving winter months having a higher number of newly dx’d people with diabetes. 
Here's something to marinate on: Finns have the highest diagnoses rate of Type 1 Diabetes.
Sidebar: I'm seriously starting to wonder if my family is part Finnish? 

In 2010,  DiabetesMine wrote a really interesting post about Diabetes diagnoses and the Ice Age Theory, which included the Finnish study and thoughts from Dr. Moalem’s book: Survival of The Sickest. It’s a good post, be sure to check it out! 

And please feel free to share any of your observations on the subject! 

FTR: I wrote this post because I'm really flipping curious about all of the above so I figured I'd blog about it~. 

Friday, October 3, 2014

The Last Indian Summer Sunday In September~

Hard to to see the complexities of the tide pool,
but take a look at the couple with the dog & keep in mind that they're standing
far from shore, in ankle deep water and on the edge of the tide pool embankment.
Photo courtesy of Purple Girl's Mommy~  
Last Sunday was one of the most beautiful Indian Summer Sundays, EVER. 
It was sunny and 79 degrees with a cool breeze and a slightly higher water temp, which made you more aware of the fluttering of fall in the air. 
And to top it off, the currents and tides had created a tidal pool between 3 and just over 5 feet deep along the shore line that stretched out along for God knows how long. 

My friends children were kayaking along the enormous stretch of tide pool and their dads were taking turns tossing each child (between the ages of 7 and 10.5)  from the embankment the tide pool had created on the edge of the ocean tide pool.
The embankment was part sandbar, part temporary stage of sorts, and smack in the middle of the ocean and the pier. You had to swim out and then through the 3 to  5+ft  tide pool to get to the ankle deep embankment in what was normally chest deep water. 

It was ocean magic in all its glory and it was fantastical.

4 year old, “Purple Girl” stood at the shore line and watched her cousins playing in the water. She was still little and couldn’t go out into the tide pool by herself, so I offered to carry her in so she could enjoy all the fun. 
I took off my insulin pump, encased it my trusty Ziploc bag and placed it in my waterproof case and then put the case in my cooler. 
Then I put on my rash-guard and grabbed Purple Girl’s hand. 
Together we walked in the tide pool until it became to deep for Purple Girl to walk, at which point I scooped her up and carried her in. 
She wrapped her arms tightly around my neck and together we glided through the water, slowly submerging and embracing our inner mermaids in the process. 
Her cousin Brown Eyed Girl swam up to us and said: Dive in guys and come play!
Me: We will, it just takes me a while to get my head wet and it doesn’t look like Purple Girl wants to go completely under
Purple Girl looked at me, shook her head and tightened her grip around my neck. 
After all, she was the littlest caboose on the cousin train and the water was still deep for her.
Brown Eyed Girl looked me all knowingly and said: It takes you a while to dive in and get your head wet because of your diabetes, right? 
Me: No, it takes me a while to dive in and get my head wet because that’s just how I am. But once I dive in, there’s no getting me out!
Brown Eyed Girl pointed to her chest and said: But you have to be careful because of your pump. 

Me: I took it off before I went in the water. It’s in my cooler by our chairs, you know the drill! I totally got this! But thanks for looking out for me, Love-bug!
Brown Eyed Girl: OHMYGOSH, I do know that! How the heck did I forget? You’ve only worn your pump my whole life!
And in that split second I realize it was true. For her 9 years on this earth, Brown Eyed Girl had become very adept in the ways of Kelly and her insulin pump. 
And once again, Brown Eyed Girl, the little mother to all of her cousins, (and who we adults  referred to as being nine going on forty,) was worried about me, my pump and D. 
I didn’t skip a beat and said: No worries girl - We’re having fun being mermaids!! 
And then as if on cue, her twin brother Hazel Eyed Boy and the rest of their cousins swam up to and around us and our mermaid antics continued.  
Purple Girl finally felt comfortable to stand on her own while holding Brown Eyed Girl’s hand while I dove head first in the water and then straight up again and shouted: Fins up mermaids - Let’s go swimming!
And we totally did - And kayaked, too. We walked and then ran along the embankment and saw schools of mullet (bait fish) and even a 3 inch sand shark in our travels.
We propelled ourselves off the embankment and did cannonballs into the sea and played until the skin on our fingers resembled prunes.  


Yes indeed, a wonderful time was had by all in tide pool in the Atlantic and on that glorious last Sunday in September of the best Indian Summer, ever~