Diatribe put together a great Storyify re: the #dstigma panel discussion they participated/presented on last week at FFL & why we need to discuss it.
I was helping in another FFL session so I missed this & I'm so grateful that Diatribe storified the session!
And #dstigma was brought up multiple times in regards to #DiabetesAdvocacy last week during Diabetes Hands Foundation's #MasterLab at #CWDFFL14.
Speaking of #Masterlab - Diatribe breaks down the #Masterlab via Storify, HERE.
And Kim has a great #Masterlab debrief today over at Textingmypancreas.com and so does Sue over @ Diabetes Ramblings ~
And the following is my 2 cents on the subject~
I Googled the word “stigma, and this was the first thing that came up:
Add a “d” or the word diabetes in front of the word 'stigma' to the definitions above & you’ve got #Dstigma.
Look, none of us should feel shame because we have diabetes - but we do.
All of us living with diabetes and regardless of the type, shouldn't feel disgraced because we bear the scarlet letter, D. But we do.
None of us should feel that we’ve dishonored ourselves or our families - but we do.
No PWD should feel Ignominy & opprobrium (OK, I’ll admit that I had to look both of those words up), but we do. Ignominy means public shame or disgrace & opprobrium means harsh criticism or centure. Sound familiar? It should because I know that we’ve all felt shame, discraced or centured - A.K.A.: Why are you checking your blood sugar in public?!”
All you need to do take a look at how diabetes is presented in the media 90% of the time and you’ll feel shame and disgrace - Not to mention anger.
And none of us should feel humiliated by our diabetes and what our diabetes requires us to do - but there are moments when we've all felt that.
And how crappy does always feeling like we have to apologize for our diabetes feel?
The diabetes guilt and the #Dstigma it causes is an anchor around all of our necks, one that many of us have become so accustomed to wearing that we actually forget it’s there - But it drags us down none the less.And even if you’re not familiar with mythology, each of us can relate to Atlas, the man who carried the weight of the world on his shoulders for eternity, because we continually carry the weight of diabetes on our shoulders for what seems like an eternity.
We perpetually find ourselves playing the role of defense with diabetes and #dstigma - And it wears us down and beats us up on a daily basis - If we let it.
There’s dstigma within our own community - the us verses them when it comes to type 1 verses type 2 and acknowledging that LADA 1.5’s exist.
Regardless of the type, we are all part of the same D Tree - Just difference branches.
And if we’re going advocate for diabetes and elevate #dstigma successfully, then we must stop with the #dstigma within our own community.
We must work together and use our powers collectively as Diabetes Advocates to create real change on all levels re: the public, private and governments perceptions of diabetes and what living with diabetes entails.
WE ARE IN THIS TOGETHER.Lastly, if you want to stop #dstigma, educate others and advocate for real change,